A new Utah law signed by Gov. Gary Herbert Wednesday could extend or even save the lives of terminally ill patients, and the new “Right to Try” legislation lets patients seek treatments that haven’t been fully approved by the federal government yet.
Cristina Might’s 7-year-old son Bertrand is among those who may benefit from the bill, as he was the first person to be diagnosed with a rare genetic disease called NGLY 1.
“We currently have nothing,” Might said. “No cures. No treatments for this condition, and we are on the clock to save his life.”
For two years, the Might family has been trying to get access to an experimental drug that could lead to a possible cure. However, many families–just like the Mights–may have to wait more than a decade for certain drugs to be approved by the FDA.
“We currently know there is a drug out there that works very well with his cells,” Might said.
With the signing of the “Right to Try” bill, patients will now have access to potentially life-saving drugs that haven’t yet been fully approved–as long as the FDA considers them safe for human testing.
It certainly put a smile on Bertrand’s face. He sat alongside Governor Herbert as the executive inked his name on the bill during a ceremonial signing Wednesday. good4utah.com/story/d/story/…
